SMA Cure for Monika

My name is Monika Lemeshonok, I am painter from Belarus. From born I have rare disease of the spinal cord - Spinal Muscular Atrophy Type 2. From this disease, I can’t walk and move, I'm in a wheelchair. But I love life and around the world. I express my love for life through painting artwork, I have art exhibitions throughout Europe and many art lovers appreciate my works.

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Thursday, February 28, 2019

Today is Rare Disease Day

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Today is Rare Disease Day! I have too rare disease - Spinal Muscular Atrophy and I member about all my friend with this disease, I member ab...
Saturday, January 26, 2019

New Online Patient Education Program on Gene and Cell Therapies Launched

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The American Society of Gene and Cell Therapy (ASGCT) has unveiled a new online resource designed to keep patients, caregivers, and the publ...
Tuesday, January 15, 2019

Over 96% of World Websites Hide Disabled Men and Women on Their Site

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TLDR: Disabled people are almost non-existent on government and stock-photos websites, and when they are represented, they are not represent...
Monday, December 24, 2018

Happy Merry Christmas!

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I wish everyone with Happy Merry Christmas!
Thursday, November 1, 2018

Started SMA charity marathon

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I congratulate everyone on Happy Halloween! Yesterday you helped me and you bought 2 of my pictures. Thank you for that! But our SMA chari...
Sunday, October 28, 2018

Very GOOD NEWS about gene therapy Avexis

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Patient enrollment is complete for AveXis Phase 1 clinical trial testing its gene therapy candidate AVXS-101 in patients with spinal muscula...
Wednesday, September 19, 2018

I need your help!

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Dear, friends! I must tell you the sad news! 😥 Unfortunately I could not collect the necessary amount for a charity account for my trip t...
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Monika Lemeshonok
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