Showing posts with label ‪‎cureSMA‬. Show all posts
Showing posts with label ‪‎cureSMA‬. Show all posts

Wednesday, September 19, 2018

I need your help!

Dear, friends!
I must tell you the sad news! 😥
Unfortunately I could not collect the necessary amount for a charity account for my trip to the clinic in Bologna. Therefore, my trip is canceled this year. I'm very upset and frustrated from this event because my health is deteriorating and it's difficult for me to breathe periodically. But I have to reschedule my trip for May 2019. I say "Thank you very much!" to those who have already sent part of the charitable funds for my treatment!

NOW I again continue collecting charitable donations for my treatment. This amount includes treatment and procedures at the Nigrisoli clinic, the cost of air tickets (for 3 people, I, my mother and grandmother), the cost of my orthopedic corset and orthopedic pillows-holders for the back for my stroller. The total cost of all this is 2000 euros.
I ask you to help me all of you to make a charitable donation or make a repost!
My charity account: PayPal: Lemeshonok@gmail.com


Monday, August 22, 2016

August is SMA Awareness Month

August is SMA Awareness Month. Through research supported by Cure SMA, scientists have discovered SMN2, the SMA “backup gene.” Most of the SMN protein produced by SMN2 lacks a key building block that is normally produced by SMN1, but people with more copies of SMN2 sometimes have a less severe form of SMA than those with fewer copies. Researchers are working to develop drugs that may prompt SMN2 to make more protein.


https://www.facebook.com/cureSMA/