August is SMA Awareness Month

August is SMA Awareness Month. Through research supported by Cure SMA, scientists have discovered SMN2, the SMA “backup gene.” Most of the SMN protein produced by SMN2 lacks a key building block that is normally produced by SMN1, but people with more copies of SMN2 sometimes have a less severe form of SMA than those with fewer copies. Researchers are working to develop drugs that may prompt SMN2 to make more protein.

https://www.facebook.com/cureSMA/

August SMA Awareness

August SMA Awareness

SMA is a rare genetic disease that affects the neurons of the spinal cord and from that weaken the muscles of the whole body. Such people can not walk and move. Sometimes from this disease a person can not breathe and swallow itself.
Every year SMA kills thousands of children and adults. And I do not care about it because I have this disease and lifelong struggle with it and I know that in the end I'll win over SMA and cure.

I ask everyone to support this post because I need your help now. Monika Lemeshonok

International map of the SMA

You can register myself on the international map of the SMA. Or search with it help of family with SMA for communication and exchange of experience.

I'm already here and I am SMA consultant https://www.diseasemaps.org/en/spinal-muscular-atrophy/