Wednesday, April 27, 2016

Help to Artyom!

Hi, Everyone!

Today I want to introduce you with Artyom, who has Spinal Muscular Atrophy type 1. He needs your help. Artyom could not move, he can not breathe and can not eat himself.

This terrible disease affects the upper sections of the spinal cord that weakens the muscles of the entire body, and he can not walk, move, and with SMA type 1, a person does not breathe by himself.


Help to him NOW! https://vk.com/club92186792



Monday, April 25, 2016

Scalevo, Electric Wheelchair


Great creation! Hope for ALL


Though the first wheelchair patent was handed out in the U.S. in 1869, the overall design of it hasn’t changed much in the years since. It’s basically a seat with wheels attached. Sometimes it’ll have footrests, or handles on the back for someone to help propel the person forward. One of the most glaring flaws of a wheelchair, however, is the fact that it cannot get up stairs. Remodeling a home or office to be wheelchair accessible can be time consuming and costly, too, since there’s more to it than just putting a ramp in front of your door. A team of Swiss students has now invented a new type of wheelchair capable of getting around the need for wheelchair ramps.

Enter the Scalevo Wheelchair, created by a team of 10 students at the Swiss Federal Institute of Technology (ETH Zurich) and the Zurich University of the Arts. The electric-powered Scalevo operates sort of like a Segway; when on flat ground, it uses two big wheels for balance, allowing the user to control movement by leaning forward or backward. It can also swivel on the spot to change direction, and features rubber tracks that resemble the treads of a tank. All of this can be summoned at the press of a button to allow the user to climb a staircase — even a spiral one.

Full text: http://www.medicaldaily.com/scalevo-electric-wheelchair-can-climb-most-staircases-and-hopes-negate-need-ramps-and-357606

Monday, April 18, 2016

Potential for SMA Therapies in Stem Cells for Motor Neuron Acquisition


New knowledge in stem cell research may help scientists advance cell therapies for motor neuron diseases such as spinal muscular atrophy (SMA) and amyotrophic lateral sclerosis (ALS).

Human neurons are as diverse as other cell types. Understanding how neurons diversify from stem cells would allow for more precise models of disease and advance drug discovery while leading the way to cell-based neural repair strategies. In a comprehensive overview, University College London researcher Rickie Patani explains how stem cells develop into regions and subtype-specific neurons, and how that knowledge may help researchers advance cell therapies for motor neuron diseases such as spinal muscular atrophy (SMA).

Text full:http://smanewstoday.com/2016/02/09/stem-cells-for-motor-neuron-acquisition-questions-remain/

Thursday, April 14, 2016

About me


My name is Monika Lemeshonok, I was born on January 27 1986 in Belarus, city Mogilev. I am administrator of this blog. My blog is about my life, an ordinary life normal girl who loves life and loves to paint. Also, my blog is dedicated to all people who are faced with SMA in them life, because I too have this disease, but in spite of that I was able to achieve a lot in my life.


Sunday, April 10, 2016

SMA Clinical Trial Symposium


This is progress in medicine!

"SMA Clinical Trial Symposium" ---> Taping now at the 2016 FightSMA Annual Research Conference. Lots of incredible progress being made in SMA therapeutics and we look forward to sharing the footage with you online shortly.

Special thank you to our incredible panelists:

Chris Lorson, PhD, University of Missouri, FightSMA Science Director

Alex MacKenzie, MD, PhD, Children's Hospital of Eastern Ontario

Brian Kaspar, PhD, AveXis

Douglas Sproule, MD, MSc, AveXis

Frank Bennett, PhD, Ionis

Wilson Farwell, MD, MPH, Biogen

Lawrence Charnas, MD, PhD, Novartis

Friedrich Metzger, PhD, Genentech/Roche

Stacy Rudnicki, MD, Cytokinetics

Kathy Swoboda, MD, Massachusetts General Hospital Center for Human Genetics



https://www.facebook.com/fightsma/?fref=photo

Wednesday, April 6, 2016

My art exhibition "Things like people".

January 15, was opening of my art exhibition "Things like people". It's been 3 months ago, but I can not forget this event.


Theme of the my exhibition - things, things in the literal sense - the ones that are all around us, and things like status or situations that happen to us or to which we are immersed. Artworks painted in an modern direction symbolism. Above each artwork, you can stop and think ...

https://www.facebook.com/groups/920616994660353/