If you do not like something in your life, just turn the page of your life and start writing again ...
I did so a few years ago. I was destined to be born rare, because I have rare genetic disease Spinal Muscular Atrophy. This is a very rare serious and dangerous disease of muscles and spinal cord, every 10,000 people are born with this disease. And it is incurable yet in any country in the world. In my life there were a lot of hard moments, but there was also a lot of good. But despite this, I've been waiting for a miracle all my life, because I believed that it was possible.
One day in 2013, I read article that the Gene Therapy drug was invented in the USA as a hope for future treatment of SMA. From that moment have passed 5 years and in my life much has changed. I regularly followed of the news of medecine, in which says that in the coming years gene therapy may be available in many countries. And I'm very happy about that. Because during these many years of waiting, new discoveries in medecine are constantly being created and new drugs and ways of treating SMA are being created.
In my life too have been changes. Now every year I go to the Italian clinic Nigrisoli in Bologna for treatment, and I get treatment there from the best specialist of SMA, Dr. Villanova. And I think that this is already a miracle for me.
Text from: https://www.facebook.com/groups/smacuremonika/
I did so a few years ago. I was destined to be born rare, because I have rare genetic disease Spinal Muscular Atrophy. This is a very rare serious and dangerous disease of muscles and spinal cord, every 10,000 people are born with this disease. And it is incurable yet in any country in the world. In my life there were a lot of hard moments, but there was also a lot of good. But despite this, I've been waiting for a miracle all my life, because I believed that it was possible.
One day in 2013, I read article that the Gene Therapy drug was invented in the USA as a hope for future treatment of SMA. From that moment have passed 5 years and in my life much has changed. I regularly followed of the news of medecine, in which says that in the coming years gene therapy may be available in many countries. And I'm very happy about that. Because during these many years of waiting, new discoveries in medecine are constantly being created and new drugs and ways of treating SMA are being created.
In my life too have been changes. Now every year I go to the Italian clinic Nigrisoli in Bologna for treatment, and I get treatment there from the best specialist of SMA, Dr. Villanova. And I think that this is already a miracle for me.
Text from: https://www.facebook.com/groups/smacuremonika/
